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- Julian Says the Alphabet – 32 mos old
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- Stop Disability Slurs! BOYCOTT The Change Up & GQ Magazine (22)
- Julian Thomas: A Birth Story (19)
- Gretchen’s story (18)
- 31 for 21 Blog Challenge, I’m In, Join Me? (15)
- Suspending Reality (12)
- The 411 on Julian’s Surgery (11)
- VIDEO: My Baby Can Sight Read at 20 Months! (oh and he has Down syndrome) (11)
- What is a Sandal Gap? & my son’s Down syndrome diagnosis (10)
- My thoughts on prenatal blood testing for Down syndrome (9)
- In Sync with the Universe (8)
- Life Inside The ICU (8)
- My letter to GQ re: hurtful Down syndrome comments (8)
- Day in the life PHOTOS (my take on #weekinthelife) (8)
- Discharge Day! (7)
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Monthly Archives: January 2011
Let it Go
I received this poem “Let it Go” by Donna Faulds from a friend today. It is a great reminder to stay in the present. “Let go of the ways you thought life would unfold: the holding of plans or dreams … Continue reading
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Welcome to Holland
On July 8, 2010 I received two emails from close friends Alyson and Hilary within 1 hour of each other. Attached to both emails was the essay “Welcome to Holland” which helped me to better understand the emotional process I … Continue reading
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New Heart, New Julian
Since Julian’s surgery, his energy has really increased! Here’s a few highlights of JT showing off his ability to hold himself up longer on his tummy and in the Bumbo. We’re also practicing his sitting up on his own, rolling over … Continue reading
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Sign Language
There’s a cool website called Signing Savvy that we heard about through the Down syndrome clinic at Children’s hospital. Today as I was feeding Julian winter squash in his bumbo I was also teaching him sign language for “eat” and “more”. … Continue reading
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Carrots, Cats, Corcorans & Cold
Here are some photos of recent activities with Julian. – Carrots all over my face, mom! – Cats are good for sleeping on – Corcoran Christmas (Tom’s mom’s extended family) – Cold is not Julian’s favorite thing
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Taking the first step
“Faith is taking the first step, even when you don’t see the whole staircase.” - Martin Luther King Jr. I saw this quote today and it got me to thinking about raising a child with Down syndrome. During the early months … Continue reading
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Discharge Day!
Our cardiologist Dr. Fulton just stopped by and said today is the day to go home!!!! Julian had a great night last night off the oxygen which was the clincher for letting us go. Over the past couple of days … Continue reading
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Reflections of the Past
When I was thinking about beginning to write Julian’s birth story last night, a bunch of memories from the past 7 months flooded into my brain. We did not know prenatally that Julian had Down syndrome, so it was quite … Continue reading
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Monkeys and Manicures
Michele came to visit and whisked me away to dinner and to get our nails done today! It was a welcome break from inside the hospital. Julian is doing great – looks like discharge is probably Monday to give another … Continue reading
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New onesie, new day
Julian did great last night. He slept very well and ate 4 oz at 4 am and another 4 oz at 8 am. This is very significant progress considering he barely ate anything since his surgery. He is also sporting … Continue reading
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