I wish we could just suspend reality and fast forward our lives to after Julian’s surgery.
Just take me to a happy place in the future…where Julian can take up right where he left off rolling over from back to belly. He’s our strong little man. We call him a little man because of his hair. It makes him look like a little boy.
I cried this morning as I played with and fed Julian, thinking that he is so little and I wish he didn’t have to go through this.
The toughest part is going to be the waiting during surgery and seeing him following the operation. We won’t be able to hug or hold him for a couple of days until he is out of the ICU. That will be the hardest part – seeing your baby going through something hard and not being able to take away the pain. I guess that comes with the territory of being a parent.
Tonight we are going to pack a little for the hospital, try to relax and get some sleep before waking up early for our 7:30 am pre-op appointment at Children’s. We received a letter that said pre-op will include “6-8 hours for a complete and safe work-up to take place. Tests needed may include: EKG, chest x-ray and blood work. You will receive pre-op teaching and a tour of the Cardiac Intensive Care Unit and the cardiac floor. A meeting with your surgeon Dr. Sitaram Emani will also take place.”
So that’s what we’ll be up to tomorrow.











































































Thinking of you, Tom and the Little Man. Holding you all in our hearts. Winging eastward tomorrow. Until we see you Tuesday…take care. We love you!
Hey, let us know if you need a place to crash in Cambridge while you’re going through this ordeal! We have a private in-law apartment, empty at the moment, that you & Tom can use to nap, shower, and rest in. We’re only 10 minutes from Children’s Hospital, or so. Or if your parents would like to stay with us again, please let us know!
Dear Gretchen and Tom,
Thank you for including me on your list. We are definitely praying for all 3 of you. We know God’s arms are holding you all close and His love and power will be enough for this frightening time. We trust in your doctors and their skill. We trust in your love for each other and the love of all who know you to help you through this time. We know tomorrow will be a long day, but your little guy will do just fine. We love you so. Sue and Lou
Hello, Gretchen. Nate and I are thinking about your family today and will be thinking even more about you and Tom and Julian tomorrow. I’m so sorry your little man has some rough days ahead. But that happy day in your future, when Julian’s home and healthy and rolling around, will be so sweet when it comes. We’re all pulling for you, sending love and good wishes from Maryland, and looking forward to meeting Julian the next time we can travel north.
You are all in my prayers.
My thoughts and prayers are with baby Julian, his wonderful parents, and the team that will be caring for Julian in the coming days. Thank you for the blog posts. TJ and I are cheering for the “little man”!
Todd DeAngelis Hi Gretchen. Our thoughts and prayers are with you, Tom and Julian. Hang in there.:-)
January 2 at 7:21pm · Like
Jeanette Bealer Thinking about you guys – all the best for Julian on Tuesday – looking forward to meeting him soon.
January 2 at 8:33pm · Like
Tracey Gibbins Krumroy Oh Gretchen. Ryan and I will be praying for you and Tom as well as little Julian. I can’t even imagine. We will be praying for strength for all of you. Much love.
January 2 at 9:25pm · Like
Lynn Yu awww Gretch. I will be praying for little Julian, you and Tom. Do you have time to talk during lunchtime tomorrow? I can help explain some of the preop stuff…
January 2 at 10:14pm · Like
Scott Cushman Deb and I will be thinking of you guys a lot over the next few days. Trust that everything will go smoothly on Tuesday.
January 2 at 10:42pm · Like
Lisa Boggs Pflaumbaum Xoxo
January 2 at 11:29pm via Facebook Mobile · Like
Laura Tuck Dietz Sending lots of positive energy your way. I know the next few days are going to be rough. Those little guys are tough though. Hopefully things will go as smoothly as possible and Julian will back to his smiling, giggling self (and rolling over again) soon! We’re thinking of all of you! Good luck!!!
January 3 at 9:37am · Like
Hope Canter Noar Gretchen and Tom,
I am sure that everything will be fine tomorrow! Medicine has come a long way, and these doctors can do wonders. After Julian recovers, he will be back to his giggling self again! I will be right there with you both tomorrow. Sending hugs and kisses…xxxxoooo.
January 3 at 11:18am · Like
Katie Daggett Bealer our thoughts and prayers are with you guys. Julian is one tough lil man…and will do great! xo
January 3 at 12:56pm · Like
Andrew Rose You and your family have more people pulling for you than you may realize. I hope everything goes well.
I am the Dad of Dr. Ram Emani of Children,s hospital. I am always happy that my son takes care of children. He is a good man. How is your baby doing?.
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