Michele came to visit and whisked me away to dinner and to get our nails done today! It was a welcome break from inside the hospital. Julian is doing great – looks like discharge is probably Monday to give another day to wean him off the oxygen. Other updates:
- Julian is now eating and holding down bottles.
- He got his left hand IV out
- They removed the dressing over his incision
- He can hold his feet again which he loves to do!
- And….he is getting better acquainted with his monkey
Thank you to Melanie, Grace and family for the chocolates and Elmo balloon! Another thanks to Sarah for passing along a little stuffed bandaged heart, which we will use to cushion the car seat straps on Julian’s chest when we take him home. Lynn gave us a huge gourmet fruit basket to keep nourished and finally three women from the South Shore “HanDS together”, a support group for babies with Down syndrome and their moms, stopped by and gave us a care package.
The care package got me thinking about how much support there is out there for children with Down syndrome and their families. One of the things that helped me in the beginning after Julian was born is another woman’s blog site that inspired me to start one of my own. My doula Teresa sent the link back in July. It tells the story of the birth of Nella, a baby who has Down syndrome. I cried a lot when I read it because I had a very similar experience. I plan to finish my draft of Julian’s birth story and share it on this blog sometime….when I am ready.
Hello Gretchen, I have been thinking of you and wanted to share a very inspiring blog site that I have been following from it’s conception.It is by a mom who lives in FLorida and her name is Kelly. It is powerful and simple all at the same time. She is also a photographer who has had no formal training and her pictures speak words. I think you will find inspiration in her words. I would suggest that you go back to the beginning of the blog…with the featured story of “Nella’s Birth Story“… Let me know if you find it helpful in any way Much Love to you,~Teresa