Things have been pretty busy around here and I continue to grow. I am now 9 months old! Below are some photos of me eating with my helmet off and my latest trick is that I can stand all by myself in my crib while holding onto the rail! It’s fun. Thanks to grandpa Mather for taking these photos. I needed another hair cut – my fourth since I was four months old although you can’t really see my hair because of my storm trooper helmet that I have to wear 23 hours a day. Mom and dad relish the cuddle time at night when I can have my helmet off.
Mommy started a new full time job last week at Davies Murphy Group (www.daviesmurphygroup.com), a PR, Marketing & Business Strategy firm servicing technology clients. It is right up the street so sometimes she can come home for lunch to see me and Grandma Sherman who takes care of me every day. Grandma and grandpa Mather come up a number of days too and I get to have them and auntie Carol take care of me too. Eventually come summer the plan right now is that I will go to a day care 2-3 days per week and Grandma Sherman will have me the other days so mommy and daddy are trying to find a fun daycare for me to go. So far we like a place called the Lexington Technology Children’s Center Lincoln Lab day care http://hrweb.mit.edu/mitchildcare/centers/lincoln/ but we are also searching for family day cares in the area.
Last week I went to Children’s Hospital to see my friends Dr. Skotko (http://www.brianskotko.com/) and Dr. Davidson at the Down syndrome clinic. We saw all sorts of specialists including a physical therapist, eye and ear doctor, nutritionist and more. I got some blood tests done for a regular check of my thyroid. Overall my health is doing great. They think I might need some ear tubes due to fluid buildup and small ear canals. The physical therapist encouraged me to keep working on my grabbing skills, was very happy with my sitting up on my own and wants me to continue practicing rolling over because even though I can do it on my own I don’t do it that often. My scar from my heart surgery in January still continues to have one spot that looks red but it will heal soon. We are lucky to have the Down syndrome clinic that will keep following me throughout my life until I am 18 years old to make sure I have access to all of the best research, early intervention programs and other stuff to help me grow and learn and take care of my health.
Dawn from early intervention still comes to my house each week – she is a developmental psychologist. We also have a physical therapist who comes. The Down syndrome clinic recommended that we had an occupational therapist to help with fine motor skills so we are going to take care of that. I also went to Dr. McCabe, the eye doctor, last week. She says that my left eye continues to be adequately lubricated even though my silly left lower eye lid doesn’t have enough muscle to hold it up. She says I can have a cosmetic surgery to fix this once I am three or four.
I still like to eat vegetables and fruit now twice a day, except this past weekend when I was feeling sick and didn’t feel like eating anything. I gave mommy the bug so she was down and out Saturday but daddy hasn’t caught it thank goodness. Yesterday I went on errands with mommy and daddy and watched daddy climb at the rock gym which was fun. My favorite activities these days are doing raspberries with my mouth, sitting up on my own and grabbing toys and just generally being cute! Thanks for reading this update and we all would love any updates about your lives.